Abstract
M.Com. (Industrial Psychology)
Albinism is a rare, inherited condition caused by genetic mutations resulting in low pigmentation in the eyes, hair, and skin; and visual impairment due to a deficiency in melanin production. In Africa, 1 in every 5,000 to 15,000 people has albinism. Various studies have been done on the condition; however, the work experiences of people living with albinism (PLWA) seems to be an unexplored area in the field of Industrial/Organisational (I/O) Psychology. This study, grounded in Humanitarian Work Psychology, was conducted in two phases with 1 theoretical and 2 empirical objectives to bridge the identified knowledge gap. The theoretical objective considers albinism’s causes, condition, its outcomes and the impact thereof on the world of work on PLWA. Empirically, the study (1) explored the work-related challenges of PLWA and (2) facilitated a developmental intervention empowering PLWA to overcome these challenges. Main challenges identified included a lack of understanding of the condition, assumed incompetence, and lack of equipment in organisations. The developmental intervention enabled participants to discover and appreciate their inherent and collective strengths, envision a brighter future for themselves, formulate a provocative proposition about their condition, design an architecture for bringing their aspirations as PLWA to life, and take action towards the enactment of their positive vision. This study highlighted the need for more education on the albinism condition in organisations; reformation of unfair labour policies; and the responsibility that PLWA have in educating others about the condition.