Abstract
This qualitative study aimed to investigate the mental health of children between ages 11 and 15 diagnosed with albinism. It explores the risk factors associated with their mental health as well as the resources these children need to build up their resilience to overcome adverse mental health experiences. The sample consisted of seven children, five boys and two girls all residing in Johannesburg, South Africa. Data was collected through administering various mental health tests such as the Child and Youth Resilience Measure (CYRM-28), Adverse Childhood Experience (ACE) Questionnaire, the Strengths and Difficulties Questionnaire (SDQ) as well as in-depth individual interviews, focus groups, and collage-making. Data was analysed by following a methodical process that highlighted various themes and subthemes which allowed the researcher to present relevant findings relating to the objectives of the research. The findings indicated how children with albinism are affected psychologically and furthermore highlighted the importance of support needed in the lives of children with albinism to assist them to build up resilience and positive mental health. Children with albinism need support from their families, friends, schools, and communities. It is important for organisations to support these families in obtaining resources to protect these children and inform the community on albinism so that society has a better understanding of what albinism is to avoid discrimination and teasing. School systems need to have better training and support programmes for teachers to accommodate students better and ensure their academics needs are met. Adopting Bronfenbrenner’s bioecological systems and resilience theoretical frameworks, the researcher discusses the implications of the findings and provides recommendations for mental health support interventions for adolescents diagnosed with albinism. Keywords: Adversity, albinism, anxiety, children, experiences, mental health, resilience, resources.
M.Ed. (Psychology)